Month:2016年7月

糖尿病Christmas in July

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As I mentioned earlier this week, I’ve been reflecting on my own diabetes quite a lot of late. Now that the dust is starting to settle on my transition to an insulin pump, I feel like there are no more corners for me to turn if I cannot make this work for me. When I made the decision to get the insulin pump earlier this year, part of my brain convinced myself that this would be the answer to getting diabetes down pat. Now that the dust has settled, I feel like I have no more excuses not to be managing my diabetes to the best of my ability.

Don’t get me wrong, I am making some promising inroads with the pump. Yet I often find myself wondering what a future with diabetes holds in store for me.

I wonder if there will ever be a cure for diabetes. Technology is amazing. I hear of incredible research breakthroughs every week. I’ve seen pictures of an artificial pancreas that could be on the market well before the end of this decade recently. I shared some incredible T1D research involving skin cells only days ago on my Facebook pagehere。我观察由患有胰岛素泵和连续葡萄糖监测器的个体驱动的开放人工胰腺系统（APS）运动，并连续葡萄糖监测器彼此沟通。s8投注 雷竞技然而，我想知道该治疗或那种突破或那种技术，将以像我这样的普通乔来实现。

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在工作中，我们总是开玩笑赢得乐透。我们经常在累积奖金时一起玩，每次我们都谈论购买手提箱并立即预订去拉斯维加斯旅行。这么多人的年龄似乎优先考虑假期，旅行和休闲。当然，我喜欢一个像我旁边的人一样的假期。但我想我是那种更倾向于在我准备跳上一架飞机上有生命中安全感的人。糖尿病会对你这么做......

I fantasise about the doctor, the dietician, the diabetes educator, chef and personal trainer that I would hire specifically for me if I won the lotto. I fantasise about paying the exorbitant costs of getting the uber cool touch screen t-slim insulin pump to Australia just for me. I fantasise about the smartphone-integrated insulin pump or glucose meter that I would pay to have manufactured specifically for me.

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As I watched Andy open a Christmas in July themed OzDOC chat on Tuesday with our “grown up” diabetes Christmas wish, I didn’t have to think about my answer at all. I wonder if I will ever feel a complete sense of having this condition under control.

照片来源：Beta BionicsandTandem Diabetes。

Pre-Bolussing, For the Win

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当我注射时，我真的很脆弱，实际上在给我的胰岛素剂量时。我经常在吃晚餐后发现自己给胰岛素，只是因为我不能从桌子上起床来抓住我的笔并锻炼我的胰岛素剂量。然后，如果我吃晚餐，那么如果我吃的东西比我预期的那样，我就会再次服用，所以我在吃完晚餐后选择懒惰。


这是我绝对热爱胰岛素泵一直依赖于我的原因之一。s8投注 雷竞技当我吃饭时，真的没有任何借口不能给予我的胰岛素。虽然这不是我转换为胰岛素泵的原因，但它确实为我提供了一种便利程度，即我根本没有注射。s8投注 雷竞技

在泵之前，我的日常胰岛素给药充满了糟糕的猜测，饭后常常让我过得太低或过高。上个月，我写了关于泵给我的方式an added focus on my carbohydrate counting，我很高兴地报告，今天我仍然努力地算上碳水化合物。

In the past couple of weeks, I’ve slipped into a really good morning routine that sees me pre-bolussing my breakfast insulin dose 15-30 minutes before I eat every day. Breakfast is probably the easiest meal to do this for, because my morning routine is almost identical each day. I usually deliver my insulin, sit and drink my coffee, go and get dressed and then come back and have my breakfast – usually a warm bowl of Oats or a slice of toast slathered with butter. Delaying the carbs until my insulin starts working usually helps to prevent my blood sugar from spiking too high after eating. I’ve been pleased with the results so far, and I’m hoping to make this a little more routine throughout the rest of the day.

Pre-bolussing also makes the prospect of higher GI foods such as whiter breads and pastries less daunting. They used to cause a lot of frustration in the aftermath, but nowadays I find that I am not so reluctant to treat myself if I wish to.

这些日子让我真正开心的另一件事是，与注射相比，我实际上使用的胰岛素较少。当Gwen首先在泵日告诉我时，这真的很难相信，但它是如此真实。我对碳水化合物比的胰岛素比注射用来的胰岛素较宽得多。我的基础胰岛素提供了精确的覆盖范围，以匹配当天的时间和我的活动水平。随着勤奋的碳水化合物计数，我的胰岛素给药更准确。当我想到它时，我实际上在饭后饭后的高度和低谷作为我的胰岛素给药的直接结果。

当我在泵之前将所有这一切都与我的生命进行比较时，我此刻就会用糖尿病工作。我非常自豪，我仍然在泵上两个月后才会聚焦，即使是通过倦怠。我觉得我很好地追踪，在年底看到我的HBA1C结果的改进。

Mid Year Blues

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I sit down in the evening, and I marvel at how quickly yet another day has gone by. I glance at the calendar, and I cannot believe that it will be August in a few days. I watch the mornings slowly beginning to get lighter, and I want to make the most of this beautiful time of the year before its gone once again. Another Friday rolls around, and I cannot believe how quickly the weeks are flying by.

在盛大的事情方案中，有一百万件我想做的事情。

我想每天坐下来写作。我想把更多的努力进入我的饭菜，而不是我每天吃午餐的通常烤三明治。我想拯救我在午餐时间上花费的钱。我想在健身上工作。我想改善我的HBA1c。我想在本周末完成所有奇怪的工作。我想读书。我想迷上一场新的电视节目，而不是缺乏兴趣睡着了。我想为自己腾出时间。我梦想有一天有一个我真正热衷的职业生涯。 I want to feel full of energy. I want to be excited. I want to be enthusiastic. I want to go to bed feeling fulfilled at the end of the day.

In this grand scheme of this thing that we call life, there are simply not enough hours in the day to get all of these things done.

Last week at the Telethon Type 1 Diabetes Centre in Perth, Canadian T1D athlete Sebastien Sasseville spoke about having a bank of good and bad blood sugar levels. He reminded us that there’s no point focussing on those bad readings that were deposited in the past. Like anything in the past, there’s nothing I can do to change it. I can only look forward, and at what I can do today to deposit more readings into the good blood sugar bank.


I’ve definitely been reflecting on my own diabetes management quite a lot at the moment, particularly now that things are starting to settle somewhat with my insulin pump. I think a lot about where I’m hoping to be with my diabetes in the long run, and what I hope to achieve.

One of my favourite quotes reads “no expectations, no disappointment.” I’m often reminded of the diabetes goal I set for myself at the beginning of the year. That goal of striving for stable overnight glucose levels was full of expectations, and led to a lot of disappointment.

While I’m unlikely to start training for a climb up Mount Everest or a triathlon across Canada anytime soon, I did take away a small piece of inspiration from Seb’s talk. Going into the second half of this year, I’m definitely going to try to focus more on my diabetes for today, and for the now.

Because in the grand scheme of things, the now is what is going to get me to where I want to be in the long run.

Pump Doubts

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After a few infusion site failures of late, I’m starting to become really self conscious. After every new site change, I become really paranoid of whether it’s a failure or success.

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I poke my infusion site, trying blindly to detect a kinked piece of teflon that should be sitting underneath my skin. I prod around the infusion site on my stomach, trying to feel bruising and pain. I stand still while my pump is delivering an insulin bolus, waiting on edge to detect any stinging. I lift up my jumper compulsively, watching the colour of the skin underneath my site like a hawk.

我想到我的输注遗址下面的皮肤组织是否足够强大，以处理价值3天的胰岛素推注。我经常在我的泵上进行每日日常剂量历史，质疑它是否太高。为了随后的胰岛素推注，我对我消耗的碳水化合物感到内疚，这将不得不进入皮肤下面。

I check my levels like crazy after a site change, impatiently looking for signs that the insulin is heading successfully underneath my skin. I keep an eye on glucose movements like a hawk. In a moment of paranoia on Saturday, I even ripped out a perfectly good infusion site because the correction was taking too long to work it’s magic.

I draw dots on my stomach in permanent marker, in a desperate bid to keep on top of site rotations. I stare persistently at the real estate on my stomach, deliberating over just the right spot to place my new infusion site. I worry about how soon I will be able to re-use an area of real estate again.

In moments of site failures, I question whether this is really worth it. I think about results around my diabetes, and I’m almost certain that I won’t see any improvement yet. I’d be lying if I said I haven’t had fleeting thoughts that maybe this is not working for me. I worry that I won’t be able to make this work for me. I stand in my room for minutes on edge, pacing, deliberating over a site change or a shot of Lantus.

But when I think about going back to Lantus, I think about the level of control I will lose around my basal insulin rate. I think about how unfocussed I was on injections, blindly guessing and correcting all the time. I think about all of the time and investment I’ve put into this insulin pump, and I know that I’m not ready to pull away from it just yet.